After 5 relapses since November, and non-stop steroids, we decided to try a new medicine today for Myla. This was a really hard choice for us. We thought about it for four months to pull the trigger. The medicine is called Cyclosporine. It is a very common drug used for Nephrotic Syndrome but not a favorite one because of the side effects. The two biggest side effects are facial hair growth and gum overgrowth that could grow so much that it covers the teeth. So with heavy hearts, Myla will start it tomorrow.
Myla spent most of today really upset. She kept saying she does not want to look like a monster. I feel so bad for my little girl. Days like today I am so grateful that we home school. Can you imagine how mean kids would be to her at public school?