Myla has relapsed again......
I saw this story tonight and my heart goes out to this sweet girl and her family.
The news story is about a little girl named Keyara Walls. She has Nephrotic Syndrome just like my Myla bear does. Keyara was diagnosed when she was only 1 and is now 6 years old. Her Nephrotic Syndrome does not seem in control like Myla's is for the moment but it scares me, really scares me to read this and think about how quickly Myla's life can change.
I have felt so blessed that Myla has had a break from high dose steroids for about a month. She has slimmed down some and her mood has been more even.....
But how as a mom do I not scream out and say no I do not want to give her the bad drugs any more. No I don't want to make her body hurt. No I do not want to cause anymore damage to her body or her eyes. No I do not want her to gain weight and then for her to feel embarrassed that she is wearing a leotard for her dance performance and people will see her "big belly" (Myla feels that way not me).
Then I think I want my daughter to live so I give her the bad drugs. Knowing that even if she one day grows out of this that there will still be last effects for everything we gave her to save her life.
I cry for my little girl, I cry for all the kids that have it so much worse than Myla.
Please take a few minutes to read Keyara's story. It really helps put life or trials in perspective.
(In Keyara's picture I know those cheeks all too well. Notice how large her face is but how little her ankles are. That is so Myla when she relapses)