Monday, December 13, 2010
I saw this story tonight and my heart goes out to this sweet girl and her family.
The news story is about a little girl named Keyara Walls. She has Nephrotic Syndrome just like my Myla bear does. Keyara was diagnosed when she was only 1 and is now 6 years old. Her Nephrotic Syndrome does not seem in control like Myla's is for the moment but it scares me, really scares me to read this and think about how quickly Myla's life can change.
I have felt so blessed that Myla has had a break from high dose steroids for about a month. She has slimmed down some and her mood has been more even.....
But how as a mom do I not scream out and say no I do not want to give her the bad drugs any more. No I don't want to make her body hurt. No I do not want to cause anymore damage to her body or her eyes. No I do not want her to gain weight and then for her to feel embarrassed that she is wearing a leotard for her dance performance and people will see her "big belly" (Myla feels that way not me).
Then I think I want my daughter to live so I give her the bad drugs. Knowing that even if she one day grows out of this that there will still be last effects for everything we gave her to save her life.
I cry for my little girl, I cry for all the kids that have it so much worse than Myla.
Please take a few minutes to read Keyara's story. It really helps put life or trials in perspective.
(In Keyara's picture I know those cheeks all too well. Notice how large her face is but how little her ankles are. That is so Myla when she relapses)
Friday, December 3, 2010
Tipping the scales at 13 pounds, Capri is a little lady.
To say that Capri is a mama's girl is a big understatement. She will only let me hold her. She will give daddy about two minutes and then she is done. She does a great job of making me feel special.
At six months old if someone was holding her and I went to go "save" her she would clap for me. Now everything is worthy of clapping.
She is so close to crawling and pulls herself to standing. Normally I welcome the idea of my babies being movable but this time around I really just want to keep her a baby just a little longer.
Clapping in action.
Kirk's mom has a three story house that she rents out about two blocks from BYU. It so happened that it was vacant for a few months and she was kind enough to let us stay there for a week. We LOVED it.
It was a nice treat to go on vacation and have a whole house to ourselves. When we got snowed in I was so happy we were "stuck" a few more days.
Sariah just happened to be asleep every time we went out to play in the snow. I guess we wore her out!
Myla was pro at making snow angels.
This was where we were staying. What a beautiful winter wonderland!!
Christmas lights at the Salt Lake Temple. The pictures did not turn out that great since I only had one hand. It truly was beautiful there!
Kirk was in the executive MBA program, for working professionals and graduated with straight A's!
He will walk with his class in February so I will include some pictures then but I wanted to celebrate that he is DONE!!
Monday, November 15, 2010
Tag blankets and I spy bags (these are great go with child toys).
Baby and toddler dresses
I LOVE these diaper/wipe clutches. This was the only left and I like the fabric but I really loved some of the other ones. I wish I would have taken pictures before.
Monday, November 8, 2010
Tuesday, November 2, 2010
Monday, November 1, 2010
I have a couple ideas that I would like to make but I thought I would see if anyone wants to join me. An idea would be we could get together once a week or every other week to share ideas and make some presents.
Are you in???
Saturday, October 30, 2010
All different kinds of ribbon cut about 2 inches long
toy rings (optional)
button snaps (optional)
First, pre-wash the fabric you decide to use. Don't tell anyone but I never pre-wash. I know, I know, those are the rules but I don't like that rule and I have not had a problem yet...
Fold your ribbons in half and pin them on the bottom fabric all the way around. I like to put my ribbon in a pattern so the whole thing matches. Either way works.
Now sew a single stitch around the entire square close to the edge.
Thursday, October 28, 2010
For every birthday growing up my mom would make us our favorite homemade ice cream. She would pull out the wood barrel ice cream maker, fill it full of ice and rock salt and for hours (it seemed) we would hear that thing running. The ice cream was amazing!! I have since tried to pass that tradition down to my kids but it just seems like so much work.
Not any more!! For my birthday my mom bought me a Cuisinart Ice Cream Maker. Let me just tell you I am totally in love. It takes 20 minutes to whip up a batch of ice cream and you can either eat it then and have it be more a soft serve or freeze it for a few hours and it is more like store bought.
It makes the perfect size for our family and there is normally not a ton of left overs that will be calling me name for days.
Any ideas what color store bought vanilla ice cream is??? Yellow. Any ideas what color homemade vanilla ice cream is? White. Also I can read the names of everything I put into my mine. Just something to think about.
Here is to a almost guilt free dessert. Quinoa pudding! If you like quinoa you will love this.
If you do not know what quinoa is (pronounced as KEEN-WAH ) let me bore you for a minute. because it is amazing!
Quinoa is 100% whole grain and is close to being a perfect food source in the balance of nutrition it provides. Technically it's not a grain but they call it that. Quinoa is an excellent source of protein - 12% to 18%. According to The National Academy of Sciences, quinoa is "one of the best sources of protein in the vegetable kingdom". Quinoa contains the amino acid lysine which helps the body produce protein. It also helps the body process the protein in the quinoa and in other foods. The World Health Organization has rated the quality of protein in quinoa to be equivalent or superior to that found in milk products. See amazing!
This recipe I found here came from a beautiful blog. Worth checking out and drooling over.
Now go enjoy some dessert.
makes about 4 8 oz servings
3 cups whole milk
1 cup heavy cream (optional but makes it creamer)
1 or 2 tsp vanilla (mexican of course)
1/4 cup organic sugar
pinch of salt
1 cup quinoa
1 cup strawberries, diced
1 Tbs organic sugar
chopped pistachios (I did not add them but a great idea if you like nuts on desserts)
Place the quinoa in a strainer and rinse it with cold water.
Combine the milk, cream, sugar, salt and vanilla in a medium saucepan and bring to a simmer. Add the quinoa and stir. Reduce heat to medium low and cook for about 30 minutes stirring every few minutes. If skin starts to form on top of the milk, just stir it back in. The milk will reduce and thicken. Ladle into bowls.
Place cut strawberries in a bowl and sprinkle them with sugar. Toss them and let them sit at room temperature for about an hour until juices start to come out.
Top the puddings with the strawberries and chopped pistachios.
Monday, October 18, 2010
Well at four years old Myla is a reader! It is so fun to see how excited she gets each time she learns a new word. She even read friends today (seven letters)!! Good job Myla we are so happy for you and love watching you grow.
Tuesday, October 12, 2010
For just over a month now Sariah has been having "episodes" (3) that look like seizures. Just to be safe we brought her into her doctor and from there they made an appointment for a EEG.
With the help of a great friend and my sister we went in today for her EEG. We had to sleep deprive Sariah so that she would sleep during the appointment. On a side note if you sleep deprive the child that also means you sleep deprive the mom (why am I still awake???) Since Kirk left early early this morning to Florida for business I was worried about how I was going to keep Sariah awake on the drive down. Nikki watched Myla for me and my sister drove all the way from Roseville to drive with me to Sacramento and also to take care of Capri during the appointment.
It went really well. I had to get Sariah to fall asleep so I gave her her drug of choice.... you guessed it raisins! I don't know what it is but raisins do it every time. She puts some in her mouth and starts sucking on them while she takes some in her hand and then rubs them on her lips, face, arms, eyes..... you name it. I know it sounds really weird and lets face it, it is ummm interesting but sooooo cute at the same time.
Once she was out they hooked her up to all kinds of wires then monitored her for about 25 minutes. After that they put on a strobe light for about 5-8 mins and then I had to wake her up and then they monitored her one last time. Then off we went. We should find out on Friday (which means next week sometime) the results. I really thing everything is ok but at least this will give us peace of mind!
This picture was last month before I bit the bullet and potty trained Sariah. She was so ready and was potty trained in one day. For my kids so far 2 1/2 is the perfect age to potty train.