Sunday, July 5, 2009

Vacation and Hospitals

Hurray for vacation... boo for hospitals!

A little over a week ago I noticed that Myla's eyes were puffy and then each day they got more puffy. I took Myla to the doctor before I left out of town on Thursday and the doctor said she had a double ear infection and that could be why her eyes were swollen. I know she noticed my hesitation so she said well lets take a urine sample just in case. I could not get Myla to go to the bathroom so I thought she was just not sure about peeing in a cup. Her face did look much better and so we flew to Arizona that night without another thought. Friday she woke up and her face was puffy again and by that night I noticed that her stomach was really large. I also started to think that I did not notice if she went to the bathroom at all. I asked my sister and mom if they had seen her or taken her and they said no also. On Saturday morning her face was not as swollen and this whole time her has been acting just fine. I called the advice nurse because it seemed like she was bigger in her legs and her pull up was dry and she would not go to the bathroom. The advise nurse said that push fluids down her as much as I could and just watch her all day. If she had not gone to the bathroom by that night then bring her into the emergency room. Well by Saturday night she still had not gone and by this point the last time I remember her going was Wednesday and she was looking really big. I took her to Phoenix Children's Hospital and they were amazing. The first doctor that looked at Myla just said well lets run some test to see. He must have sent another doctor in since he was not sure and as soon as he saw Myla he knew what it was. After the tests came back it confirmed that Myla has Nephrotic Syndrome.
Nephrotic Syndrome is a set of signs or symptoms that may point to kidney problems. They clean the blood by filtering out excess water and salt and waste products from food. Healthy kidneys keep protein in the blood, which helps the blood soak up water from tissues. But kidneys with damaged filters may leak protein into the urine. As a result, not enough protein is left in the blood to soak up the water. The water then moves from the blood into body tissues and causes swelling.
So what does that mean? That means Myla is now on steroids and will be going to a kidney specialist for probably six months to a year.

You would not believe how big Myla is today. The doctor said she looks like the michelin man. Since Thursday she has gained 5 lbs. It is so crazy holding her because she does not feel like my little girl. We are still in Arizona and will be here until Wednesday night. Kirk is home and going crazy not being here with is little girl. We go see a specialist tomorrow and I hope that will make us feel better knowing what to expect.


Katie said...

Oh man Tiff! Thats crazy! I hope she feels better soon and that you guys get to come home soon. Feel better Myla, and in the meantime Tiff...enjoy her rolls. I'm sure they are delicious and she'll never have them again.

cambridgeclan said...

Oh, Tiffany. What an "adventure". I hope all goes as smoothly as possible and that Myla stays in good spirits. We love you guys.

Nikki said...

OH my gosh....I'm sooooo sorry. How is Myla taking it? What can we do to help!!! Let me know.

Related Posts Plugin for WordPress, Blogger...