Thursday, July 23, 2009

Remission!

Hurray Myla is in remission. Yesterday we went to the Nephrologist and found out that Myla has responded to the steroids really well. Myla will still have to be on steroids for at least the next two months but is doing so much better. The doctor said she will probably relaps up to 6 to 8 times a year. We will have to test her urine everyday for protein for the next 10 or so years. Can you imagine. Crazy! Having Myla on steroids has been really hard. Her personality has totally changed. Once in a while I see small glimpses of my little girl and it makes me miss her so much. It is hard having Kirk's family here, they have not seen Myla for a few years and so they do not know what a amazing girl she is. They only see this crazy girl...

On a brighter side, since we have been going to the specialist it has made me so grateful that I have healthy kids. There are some really sick kids. Kids that will be sick their whole lives. For this we are really blessed!

1 comment:

Katie said...

Good job Myla.....she looked so darn cute on Sunday. Did they make that hat in adult sizes too? I want one!

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